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Welcome to the LEMS Aware Podcast. We’ve been waiting for you. My name is Kevin Freiert, and I will be your host. Lambert-Eaton myasthenic syndrome, also known as LEMS, is a rare neuromuscular disease that can have a profound effect on a person's mobility and quality of life. LEMS disrupts the comm…

LEMS and Family Life

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When you are young, active, and always on the go it can be hard to accept that something is suddenly happening to you. This episode gives us a glimpse of what it is like raising a family after being diagnosed with LEMS (Lambert Eaton Myasthenic Syndrome).  In this episode, we talk with Connor about…
New symptoms. Invisibility. Isolation. Being diagnosed as Rare. Advocacy. Building connections. Ashley Gregory and Price Wooldridge walk us through their journeys living with LEMS. Ashley was starting a career, whereas Price held years of broad experience when their diagnostic odysseys began. They …
“Recognize your limits but don’t limit yourself... There's a life lesson, maybe a metaphor in the airborne and parachute training that I went through. When something is new and difficult that first step is the hardest. Once you take that step with the right mindset and the right resources, like a w…
The start of new symptoms can be life changing for a patient, but they aren’t the only ones effected. Behind most patients there is a caregiver in some form, someone who is along for the journey, to experience the highs and lows and to be a cheerleader, note taker, medicine giver, and advocate when…
면책 조항: 이 페이지에 포함된 팟캐스트와 작품은 Catalyst Pharmaceuticals, Inc.에서 가져온 것입니다. 이 팟캐스트는 소유자의 재산이며 Listen Notes, Inc.와 제휴하거나 보증하지 않습니다.