00:00:00Chapter One: Helen
00:03:35Chapter Two: The Convening
00:14:59Chapter Three: Naomi's Circle
00:16:53Chapter Four: Proceed
이 에피소드에 관해
Helen Park has stage III ovarian cancer and a spreadsheet with 412 papers in it. She has fired oncologists, found better care, and learned to run her own architecture because the system was not going to run it for her.
When she learns that Mara Whitfield has been helping coordinate her care from a distance, Helen does not ask for an apology. She asks a better question: how many of us are there?
Mara convenes the Principals for the first time: Kwame in Cambridge, Yolanda in Boyle Heights, Wen in Pikeville, Loretta in Window Rock, June in Wyoming, and Helen in California. They tell each other what the architecture has done to them — and what they have had to become to survive it.
Then Mara names what has been forming all along.
The Sewing Circle.
Meanwhile, Naomi begins a circle of her own for caregivers — the people who have been holding everything for the people who are patients.
Hermes logs the meeting. The architecture prepares to respond.
Themes:
Patient sovereignty, oncology, caregiver identity, the Sewing Circle, mutual aid, collective power, institutional containment
Tags:
cancer care, ovarian cancer, patient advocacy, caregivers, Sewing Circle, healthcare reform, AI medicine, care networks, Health 4.0, BEDSIDE, The Pulse
BEDSIDE: The Pulse is a work of speculative health-system fiction written and narrated by Robin Blackstone, MD. It is not medical advice.
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면책 조항: 이 페이지에 포함된 팟캐스트와 작품은 Robin Blackstone, MD에서 가져온 것입니다. 이 팟캐스트는 소유자의 재산이며 Listen Notes, Inc.와 제휴하거나 보증하지 않습니다.
