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Roman Perkins was born with Hurler syndrome (MPS I), one of the rarest genetic disorders in the world. Doctors didn't expect him to live into adulthood, but today he's defied those expectations and is sharing what life is really like living with a rare disease.In this episode of the What …
The What It’s Really Like podcast is now available on all major podcast platforms! If you love the show, please subscribe wherever you prefer to listen so you never miss a new episode. What’s it really like to become paralyzed after a car crash, navigate relationships as a disabled woman, and disc…
What’s it really like raising an autistic child as a single mom? In this episode, I sit down with Christine Romeo, mom of Abbey Romeo from Netflix’s Love on the Spectrum, for an honest conversation about parenting, autism, advocacy, and navigating the journey from childhood diagnosis to adulth…
In this episode of What It’s Really Like, I sit down with model, actress, and disability advocate Jillian Mercado to talk about growing up with immigrant parents, being misdiagnosed before finding out she actually had muscular dystrophy, and finding her way into an industry that had rarely made spa…
Dichiarazione di non responsabilità: Il podcast e la grafica incorporati in questa pagina provengono da Molly Burke, che è di proprietà del suo proprietario e non è affiliato o approvato da Listen Notes, Inc.