Wait…Is That Actually True? Building Immunity to Diabetes Misinformation

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If you've lived with diabetes and spent any amount of time on social media, you've probably seen something that made you stop and think, wait, is that actually true?
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For example, net carbs dictating meal boluses or that supplements can revive beta cell function.
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My name is Katlyn.
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I'm a certified diabetes care and education specialist who's lived with type 1 diabetes for 24 years now.
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I'm a health coach at the Integrated Diabetes Services.
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I have been in the healthcare space for a long time.
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So when I heard Keira speak, I really wanted you to come onto this podcast so that we could hear your thoughts on this great topic of diabetes misinformation.
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So Keira, you are a nurse.
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You are also a certified diabetes care and education specialist.
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And my understanding is that this project is a part of your capstone for your master's program.
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And that's where I heard you speaking was at the ADCES 2026 conference.
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Tell me more about why did you choose the misinformation topic as your capstone?
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Yeah, so I would say the topic kind of came to me at this like intersection between my personal experience and my professional experience.
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So personally, I was kind of reflecting on my relationship to social media and information on the internet.
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And at the same time, I was noticing these patterns with my patients, like they'd be coming in and they sort of tell me these different myths.
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And I'd hear different ones, but then I started noticing the same ones coming up over and over.
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And there was one patient in particular that really stuck out to me.
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And this is kind of the point where I decided, okay, this really warrants further research.
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But this one patient I was working with was having a really hard time trying to get his numbers back, you know, under control and meeting his goals.
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And, you know, it was a really emotional conversation.
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And he was like, you know, I'm doing everything I possibly can.
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I even changed the flavor of my coffee creamer to cinnamon.
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And I just remember being so caught off guard in the moment because he was so emotional.
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But at the same time, I was so confused.
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Like, what does your coffee creamer have to do with your blood sugar numbers?
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And so when I asked him to explain more, he just kept referencing they and then come to find out they really just sources on the internet, right?
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So I was like, okay, I need to kind of figure out like, what is it that's drawing people to this kind of information?
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Like, why is it that I keep hearing these same things over and over?
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Like, what is so convincing about it?
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So that's kind of what started me along, kind of down that rabbit hole.
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And then my background for my master's degree was in health communication.
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And so part of that is you learn about marketing and persuasion.
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So it was just a natural overlap, I would say, between my personal relationship with social media and the internet, my education, and then also just what I was seeing.
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Welcome to Think Like a Pancreas, the podcast, where our goal is to keep you informed, inspired, and a little entertained on all things diabetes.
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The information contained in this program is based on the experience and opinions of the Integrated Diabetes Services clinical team.
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Please discuss any changes to your treatment plan with your healthcare provider before implementing.
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This program is sponsored by SAB-Bio, a clinical stage biopharmaceutical company focused on advancing research for people living with type 1 diabetes.
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A new medicine called SAB-142 is designed to help reduce or prevent loss of insulin-producing beta cells.
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The Safeguard Clinical Study is testing this investigational medicine in people newly diagnosed with type 1 diabetes to see if it can help prevent disease progression.
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People between 5 and 17 years old may qualify to participate.
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Learn more at safeguardstudy.com or call 844-763-1890.
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One of the things that I really want us to, and I know we're going to get to, is the conversational point about why people are seeking health information on social media platforms and the internet, like kind of the why behind that.
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And really your concept of building immunity to those things, especially people that have any chronic health condition, but diabetes in particular, can have a lot more vulnerability to misinformation because it is so complex and broad topics that are covered in diabetes.
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Yeah, yeah, absolutely.
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Why do you think diabetes misinformation is so pervasive in social media?
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Like I said, I've heard the cinnamon thing for decades, I feel.
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Why does it keep coming back?
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Well, I feel like there's two sides of the equation here.
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So from the social media standpoint, essentially the way these platforms function, right, is to capture your attention and then keep you on whatever app or platform you're using, right?
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And so they use algorithms basically to like feed you the information that's going to keep you staying on the longest.
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So if you're managing diabetes, there's a lot of reasons why you would be drawn to social media.
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So one, like you said, it's extremely complex.
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So you can only get so much from your provider appointments, eventually something's going to come up in your day-to-day where you don't know what to do and you can't immediately reach out to your provider.
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Because let's be honest, they only see us like once every couple of months and then we try to keep up on the messages, but people are managing decisions, I mean, almost hour by hour.
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That demand for information is going to definitely drive you to some other sources.
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And then I would also say like the individuality of it can also, I mean, that's part of the complexity, right?
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But I think that's also what leads people to social media because it's very hard to give blanket advice, I would say.
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And so you're, or very, very customizable advice.
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And so people are always going to be searching for more, and social media is very good at, like I said, capturing your attention, but then also figuring out what keeps you on there.
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You easily could end up down these rabbit holes.
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And there's a name for it, it's doom-scrolling, right?
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Doom-scrolling, yeah, doom-scrolling.
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You're stuck in this loop because the information is entertaining or it's distracting and whatever it is that brings us to social media.
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And you're right.
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One of the things I thought was intriguing about your talk was obviously the big platforms.
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You've got YouTube, TikTok, Facebook, Instagram, but from a diabetes standpoint, there's other diabetes-specific communities, not just on like Facebook groups, for example, but the Beyond Type 1 community, there's 2 Diabetes, Children with Diabetes, the We Are Not Waiting groups.
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There's a lot of platforms, which is great for information, but what are some examples of pitfalls that you've seen or part of your research that you've come across?
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Yeah, I would say, so the pitfalls, I guess, are that the information that grabs your attention the most is usually not the most accurate.
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And there's a reason for that, right?
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So the advice that we give to patients, if you think about it on a grand timeline, does not change very quickly.
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It tends to be very similar, right?
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So it's the same things about diet, managing physical activity, sleep, stress.
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It tends to be very repetitive.
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Now, the things that capture our attention are things that usually defy our expectations.
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So they're novel or they're extreme or they draw out these emotions.
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And so I think the pitfalls are that, like I said, what captures our attention is just not compatible with the scientific evidence.
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And it's impossible to make scientific evidence be as attractive as misinformation.
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It's almost like we have this just natural tendency, just based off of the way we process information, to lead us towards information that's entertaining, really, but not helpful or scientifically proven.
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And unfortunately, when you expose yourself more to those ideas, it can start to infiltrate your beliefs about what's true and what's not.
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And then ultimately, that's gonna lead you to make certain behavioral decisions, which is when you see the real consequences of this come up, is in that decision-making.
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Right, I mean, that's a good distinction, because viewing the information, whatever platform it is, versus taking action on it, that's really where the precaution can come, especially if the information is not credible.
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But like you said, when somebody's very entertaining or they're convincing on social media, it can be really difficult to discern what's what.
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So one thing that you had outlined is there's some common themes that the misinformation-type material tends to fall into different buckets.
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Tell us more about what those categories might look like.
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Yeah, so based off the research I did, the categories that tend to come up over and over tended to be usually extreme diet recommendations.
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So that's gonna be things like, this one food will completely change your blood sugar, or things like, if you have diabetes, you should never eat fruit, right?
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So things that are very extreme.
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And then you also have cures or alternative treatments.
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So cures being things that like, I mean, shoot, it could be anything, but pretty much anything that promises to completely cure your diabetes, reverse it, which, you know, that's problematic language, because we know you can't necessarily cure diabetes, you can manage it extremely well, right?
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But they sell it to you as a cure, like a one-time fix.
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One thing that I think is important for us to remember is that social media isn't a neutral library of information, right?
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That's kind of what we're getting at here, is that somebody can have a very genuine personal experience that is unique to them, that may not be able to translate universally to others.
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And I think that's where we can kind of get into a little bit of a sticky spot for individuals taking action based on that one unique individual's experience.
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Yeah, absolutely.
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It's not a neutral library.
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And people's personal experience is just that, like it's personal experience.
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And then, like I said, the way these algorithms function is not necessarily a representation of what is most common, what's happening often, what happens to most people.
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It's simply what is getting a lot of attention.
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So you don't want to look at social media as an objective representation of reality.
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And when you hear people's personal experiences, I would take them as just that, that person's experience.
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But we know diabetes is so complicated that it's extremely harmful to try to apply what one person does to the next person when there's so many different factors.
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That's so true.
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And so let's give some more examples, I guess, what does this diabetes misinformation actually look like?
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So, for example, the thing that you brought up before, cinnamon can lower blood sugar, right?
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It seems pretty harmless at the surface.
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So how, when might this become categorized as misinformation or become potentially problematic?
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Okay, so the definition of misinformation, so if you look at the literature, it varies a little bit.
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But the one that I like to go with is basically just information that does not match scientific consensus.
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Now you have people who are intentionally trying to be misleading, which some would say that's disinformation, but sometimes it's hard to infer intent, right?
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So I just label kind of all of it as misinformation.
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It doesn't match up with scientific consensus.
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So you see something that says, okay, cinnamon can lower blood sugar.
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So for example, what's the problem with a claim like that?
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So is there a difference between there's some research looking into this and that cinnamon lowers blood sugar, right?
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I think that's what you're getting at.
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Yes, yeah.
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So that's a good one.
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Because after I had that patient, I actually looked into this, right?
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So basically what I realized what was happening with that situation, I think there are some studies that show some influence on blood sugar, right?
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And then you have other studies that don't show that effect.
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So really, if you look at the research as a whole, it's inconclusive.
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So there is a difference between one study showing an effect versus having strong enough evidence to be able to recommend this to a population.
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Because it becomes reproducible at that point because the effect is consistent, right?
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Exactly.
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We need to know that the effect is consistent and then also that it's safe, right?
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How does this interact with other medications?
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And I think that's also what makes misinformation so convincing sometimes is because you'll see people make these claims and they'll post the study.
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But if you're not a researcher, which who is, you don't necessarily know all the correct questions to ask.
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And so it seems so convincing.
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But what- Or the study design, right?
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Like we can get into a whole new discussion about that.
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But I know what you're talking about is that what's the actual quality of the research?
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Yeah, they may have had an association, but that doesn't necessarily mean a causal effect.
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And I think that's where things get a little bit more tricky.
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And when it comes to the cinnamon in particular, there's a difference between flavored coffee creamer or sprinkling it in maybe the coffee grounds when you brew it versus the dose effect that you need to have a reproducible blood sugar lowering effect and the harm component of it.
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Is this actually safe?
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Really, that's what it comes down to.
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So in the case of like the coffee creamer, for example, right?
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I looked this up too after he mentioned it to me.
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So the coffee creamer he was supposedly using doesn't even have cinnamon in it.
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It's just a cinnamon flavoring.
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So flavoring, interesting.
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Yeah.
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So it's like we've departed so far from this one little tidbit of information.
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And yet, you know, we're having this really emotional conversation in my office because he's so frustrated with managing his care.
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And he feels like he doesn't know what else he can do.
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Yeah.
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Yeah.
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That's, that is very interesting.
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And it goes to show like all of, you don't always have all the information.
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So, okay, let's move on to another claim that's a little bit more extreme, I would say.
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So if I have a keto diet, for example, I don't need my insulin anymore.
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So what's the problem with something like that?
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To me, the major problem with that...
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Or why might someone say that in the first place?
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Sorry.
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Right, right.
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I think the major issue with that amongst a lot of claims like that is that it really oversimplifies the situation.
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When you remove all nuance is kind of when you get in trouble.
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And so it's understandable, right?
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It's understandable to want to pursue that simplicity because it is such a complex disease and it does take so much effort to manage, right?
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So I understand why people pursue that simplicity.
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But the problem is that simplicity does not reflect reality.
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So at some point you will get yourself in trouble by just sort of trying to follow these simple rules.
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Unfortunately, that's just not reality.
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Yeah, I could see, obviously, someone who's maybe newly diagnosed with type 1 diabetes and they notice that if they are having a very low carb diet that their insulin needs are different and then potentially just stop taking their insulin.
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Now they're in the hospital with diabetic ketoacidosis, DKA, right?
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So that's super harmful.
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Another example I think that's a little bit more nuanced is related to diabetes technology, right?
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And unrealistic expectations for more of a subtle message like my CGM results shows that it's not matching my finger stick glucose, right?
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So if the CGM, it doesn't exactly match my finger stick, then it must be broken, right?
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So what might be the problem there or how it doesn't necessarily look like misinformation on the surface, that's kind of a message, right?
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Right, right.
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Yeah, so that's the thing.
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So with like devices in particular, right?
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They're excellent, but they're not perfect.
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And so a lot of misinformation messaging you hear around that is just kind of like, well, these devices are no good.
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Here's an example, doesn't even match my finger stick.
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These devices don't even help.
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So that's kind of another category of misinformation when it comes to diabetes.
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What I think is helpful, especially from the provider side, I try to do this myself with my patients is like you said, set realistic expectations.
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So just like I said, with misinformation, you need to be wary when they're starting to talk in absolutes in all ways.
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So as providers, we can't do that either.
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So I never tell people that they will always match up.
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We have to walk through, how do we think about this?
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So I always talk about when I'm starting people on these devices, okay, how do we make sense of these differences?
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When does it matter?
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When does it not?
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But as providers, we have to avoid that same language that misinformation is using, right?
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We don't wanna oversimplify it just to make it easier.
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You know, it does take more conversation, but introducing that nuance really helps people think and understand better and then also trust the device more and not want to just dismiss it altogether as soon as it doesn't work perfectly for them.
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I think you hit the nail on the head with being able to trust the device.
200
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For example, seeing a message like that, that it has to match, right?
201
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It's not true, first of all, because sensor glucose is not measuring the same sugar as blood glucose level.
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They're never going to match exactly.
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They're not designed to do that.
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They're supposed to trend up and down together.
205
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But now we have someone who has this belief, they don't trust their device anymore and now can lead to diabetes distress, for example, because they aren't sure what to do.
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Maybe they're checking finger sticks 10 to 14 times a day, who knows, right?
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So it can have a really negative impact on a person's day-to-day quality of life.
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And I think that's really kind of the undertone with these messages is that are they going to cause harm and how do we recognize them in the first place?
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Absolutely.
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And I think that's a really good point.
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I do think a lot of misinformation, I can understand why it's so attractive to people because I do think sometimes it does prey on people's frustrations.
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Frustrations with their diagnosis, frustrations with their management of it, frustrations with the technology.
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And so that's why I think we really do need to be understanding of that draw to misinformation because a lot of times it can stem from bad experiences with, like I said, everything that comes with managing diabetes.
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That's so true.
215
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And if you have, I mean, diabetes is so, there's so many facets to it and there's really not a great process for someone that's newly diagnosed, for example, to get up-to-date accurate information that they can absorb in a one-time healthcare clinic visit, right?
216
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And then if you do diabetes education, a lot of times there are group class settings.
217
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So the messages are more broad.
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They may not be individually tailored to that person.
219
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So I can absolutely see why people would go to different social media platforms to help add on to their knowledge base so that they could have more confidence in what they're doing.
220
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Yeah, absolutely.
221
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So I have another example.
222
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I myself use a insulin pump that has the automated insulin delivery that talks with the CGM, right?
223
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That's the latest and greatest that really truly is the standard of care for type 1 diabetes.
224
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And it can be a super powerful tool.
225
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But I also have seen other people's graphs and their glucose trends like, you know, mine really doesn't look like that Instagram graph.
226
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And so what are, if we could shift to overly positive information, right?
227
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That could still be misinformation, right?
228
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So setting unrealistic expectations, for example, with an AID system like that, how might that affect someone emotionally?
229
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Or have you seen something like that in your own clinical practice?
230
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Yeah, yeah.
231
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I'm glad you brought up diabetes distress because I do think that does play a role into it.
232
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Again, I always, in my conversations with patients, I always try to emphasize to them that what you see online is not necessarily representative of actual reality, right?
233
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So if someone posts a screenshot of something, they could have picked their best day out of a whole week.
234
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You have no idea what happened the rest of the week, right?
235
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What we see on social media is just that.
236
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It's just a little snapshot.
237
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So you don't need to take that to heart.
238
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And then always emphasizing that there are so many factors that go into what numbers pop up on that graph.
239
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So there's just no way for you to know how much overlap there is between you and that next person.
240
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So comparison in that way can be quite harmful because you feel like you're failing just because you're not hitting these perfect numbers like your favorite influencer, right?
241
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Right.
242
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Again, you always have to keep in mind when you're consuming this, they are posting there to capture your attention, right?
243
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So they're not necessarily posting with the ability to give you the best advice, right?
244
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They are posting on their page on this platform to, like I said, capture attention.
245
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It doesn't always translate to just whoever's watching them.
246
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So I think one thing that would be helpful is for us to kind of walk through how to pause when you see something and reflect on it, like maybe a strategy in order to evaluate the information that we're seeing to decide, is this something that I should take action on?
247
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Because really that's what we're saying.
248
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If you watch it, that's one thing, but it's the behavior.
249
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If that's going to influence you in a negative way, whether that's emotionally or with your care plan or medically, right?
250
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So there's a five question pause tool that kind of combines a lot of the things that you discussed at the conference.
251
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And I've got them here listed out.
252
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The five different categories, I'll read one at a time.
253
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So the first thing from what I'm hearing is look at the message itself and decide, is this absolute, right?
254
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So what do we mean by that?
255
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Yes, so that's one of these hallmarks of misinformation.
256
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So with misinformation, you will hear a lot of absolutes, certainties, and simplicity.
257
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So this one thing will cure your diabetes, right?
258
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Things framed like that.
259
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That's a telltale sign, just because we know from scientific evidence, it's always much messier than that.
260
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So when you follow the scientific process, very rarely, I'm not sure how many absolutes actually exist in science, right?
261
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That we can prove.
262
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So if you start hearing those kinds of words, that's an immediate red flag.
263
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That's an immediate red flag because it's almost never true.
264
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Yeah, so those words, for example, cure, always or never, guaranteed, right?
265
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Like everyone, usually that's not the case when we're talking about humans because we are very unique to ourselves.
266
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So perfect.
267
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Now, the second part of our pause tool, look at who's making the claim, right?
268
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And maybe ask, what do they want from me?
269
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Yes, yes, absolutely ask that.
270
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So there is research that shows that information made from individual creators and for-profit organizations tends to be of lower information quality in comparison to information produced by, content produced by healthcare providers.
271
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So you really do need to think about the incentives of the people posting.
272
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So a for-profit company, an individual creator, generally their purpose is going to be not necessarily spreading the best information, but perhaps getting you to buy a product, click on their page, engage in some other way, right?
273
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So you definitely do want to think about the source.
274
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Okay, so are they looking for more clicks?
275
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Are they telling me to buy something?
276
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Or maybe it's just someone sharing an experience, right?
277
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That's what I'm hearing, okay.
278
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So, and that kind of leads to number three too, is this someone's experience or is this evidence, right?
279
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So how I would like to think about this one is, can we say if this happened to me that it won't happen to you, right?
280
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Are we looking at something like that?
281
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Or possibly someone's experience is X, Y, Z, but could still have valuable information for me as an individual, but not necessarily evidence-based.
282
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That's a little harder I think to dig into.
283
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Yeah, yeah.
284
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No, for sure, for sure.
285
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And the reason that it is hard to differentiate is because, you know, our minds, like stories are just so appealing to our brains, right?
286
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So these individual examples, these stories and anecdotes we hear, they're just so sticky and they're more emotionally powerful than let's say reading the literature, right?
287
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And I think the distinction to make here, I think the distinction, yeah, it's not, you know, just dismiss every anecdote, only look at the evidence because like, let's just be honest, it's just not realistic to how people consume information.
288
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But I think the real thing here is just to think, okay, one person, one data point, how do you know that applies to you?
289
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Even if this person does seem similar, right?
290
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You don't know the rest of what they're doing necessarily.
291
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Is there a measurable benefit?
292
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One data point is not sufficient.
293
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Evidence requires repeatability, right?
294
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And so I think it's just a matter of being a little more nuanced with it because we'll never just stop consuming people's personal experiences because like I said, they're so powerful, but I think it's just taking them with a grain of salt and don't automatically assume that it applies to you.
295
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And if anything, if something does feel compelling, especially with those personal stories, I would encourage people to just ask your provider about it.
296
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Talk to someone with expertise who you trust about it and see if you can get more insight on it so you can help figure out is this legitimate or is it just this one person?
297
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Yeah, you jumped to my number five.
298
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That's the last question.
299
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The point in the pause tool is, can I bring this to my diabetes team before I act on it?
300
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But we did skip number four.
301
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No, that's good because I mean, that's really what we are going to.
302
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And maybe even if it's not the diabetes team, if there's a reputable source for information that is evidence-based that you can compare the claim against.
303
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So the part four in our pause tool is asking, am I seeing this because it's true or because it's engaging, right?
304
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You all know, if you watch a video on, I don't know, floor cleaner, now you're suddenly getting all these ads about floor cleaning, right?
305
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So is this a social media algorithm happening in the background or is this something that's actually true?
306
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Yeah, yeah.
307
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And that's the thing, the social media algorithms are extremely powerful.
308
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So to an extent, it is always sort of acting on that, right?
309
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And also the things that you see is in some part just like a reflection of what you've clicked on before.
310
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Yeah.
311
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So you just kind of have to hold all these things in your mind.
312
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Like, and I know that makes it messy and harder to think about.
313
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Sure.
314
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But you can't, unfortunately, the way social media operates, you cannot assume that this has been shown to you to give you some kind of valid information.
315
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I think it's probably a safer bet to assume the opposite until proven otherwise.
316
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That would be my personal approach.
317
00:29:12,670 --> 00:29:14,370
It is my personal approach, honestly.
318
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Until you can actually validate something, you know, you have to be critical of it.
319
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You do.
320
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So I agree.
321
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And so I'm going to recap for our audience just those five, the pause tool five points.
322
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Is it absolute?
323
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Who's making the claim?
324
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What do they want from me?
325
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Is this evidence or someone's experience?
326
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Am I seeing this because it's true or because it's engaging?
327
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And then can I bring this to my healthcare team before I act on it?
328
00:29:41,170 --> 00:29:50,030
So if you are going to take something to your healthcare team, do you need to actually determine that something's true before you ask them about it?
329
00:29:50,230 --> 00:29:53,470
Or like, how do you actually bring this up?
330
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What's your strategy?
331
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Yeah.
332
00:29:55,710 --> 00:30:01,170
So I'm not suggesting that everybody becomes their own little scientific researcher, right?
333
00:30:01,170 --> 00:30:03,010
That's too much to ask of people.
334
00:30:03,250 --> 00:30:11,350
It's certainly not necessary to try to do your own fact checking before if you feel like that's too overwhelming, which would be understandable, right?
335
00:30:11,650 --> 00:30:16,250
So no, don't feel like you have to have, be prepared with your own set of facts, right?
336
00:30:16,870 --> 00:30:27,910
But definitely do bring it up to your provider, especially if it's going to change how you manage your care, just because they will be able to offer some kind of insight on whether it's safe and effective.
337
00:30:28,290 --> 00:30:33,850
And it's also just good for them to know what changes you're making anyway, just to keep it in the context of everything else you have going on.
338
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From the provider side of that, what I would say when patients do bring things up to you, and I know it can be easy to like immediately sort of just dismiss whatever it is they're bringing up.
339
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But what I would ask from providers is that you recognize when someone is bringing you something they have doubts about, it is because they trust you.
340
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And you should take that very seriously because that trust is a very powerful thing.
341
00:30:59,630 --> 00:31:05,830
And then when they bring it up, you know, approach it with curiosity, not criticism.
342
00:31:06,150 --> 00:31:08,490
So ask them, where did you find that?
343
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What made that interesting to you?
344
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What made you feel like, you know, this was believable?
345
00:31:13,430 --> 00:31:19,370
Inquire about it, see what's going on, because that's going to tell you a lot more than just immediately shutting them down.
346
00:31:19,510 --> 00:31:31,270
And from my personal experience, when patients do bring these things to me, a lot of times what you find is behind these myths is a lot of fear, frustration, uncertainty.
347
00:31:31,730 --> 00:31:37,270
You start to realize why people pursue, why this misinformation is attractive in the first place.
348
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And I think it's just much more productive.
349
00:31:39,650 --> 00:31:51,130
And I would use this conversation also to strengthen people's faith in the care you're providing them, which will require you to, you know, have to explain yourself.
350
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You can't just say like, oh, I'm the provider, just trust me, because now you sound like the influencers on the internet.
351
00:31:58,270 --> 00:32:05,310
So I would urge providers to, you know, learn how to explain your thought process in a patient-friendly way.
352
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That helps build up that trust towards evidence-based care.
353
00:32:09,230 --> 00:32:16,050
I had a patient actually call me the other day, and he mentioned to me how he saw a video about, I think a parasite that causes diabetes.
354
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I'd never heard that before.
355
00:32:17,570 --> 00:32:21,050
And so he called me to ask me, you know, what do you think about this?
356
00:32:21,130 --> 00:32:25,870
Like, I think I need to start this supplement that they were selling to fix this.
357
00:32:26,150 --> 00:32:36,030
And, you know, we had a deeper conversation, and part of that conversation was explaining, I want you to know when we make recommendations to you, it's based off of a lot of scientific evidence.
358
00:32:36,410 --> 00:32:42,510
And it's based off studies of a large number of people to know that what we're offering you is safe and will work.
359
00:32:42,630 --> 00:32:50,550
And you need to be careful when you hear these other claims, they're not necessarily making these claims based off a body of evidence.
360
00:32:50,550 --> 00:32:55,570
They can't make an informed decision to tell you that this will be safe and effective.
361
00:32:55,790 --> 00:32:58,670
Whereas as providers, this is where we get our information.
362
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This is how we make decisions.
363
00:33:00,230 --> 00:33:01,570
It's not just out of thin air.
364
00:33:01,870 --> 00:33:05,270
It's not just because I went to nursing school or I went to med school.
365
00:33:05,410 --> 00:33:12,830
It's because we follow scientific evidence and we make changes as we need to, to offer you the best care we possibly can.
366
00:33:13,130 --> 00:33:14,890
So yeah, I think there's two sides of this.
367
00:33:14,970 --> 00:33:25,570
I would love for patients to be more forthcoming about these things, but I also think providers need to have a different mindset around handling these conversations and not immediately shut people down.
368
00:33:25,830 --> 00:33:31,170
I agree with you wholeheartedly because I think what it comes down to it, everyone wants to be heard, right?
369
00:33:31,710 --> 00:33:40,470
And in our current healthcare landscape, that's really difficult to get face time with the healthcare providers that you trust.
370
00:33:40,850 --> 00:33:48,770
So being able to spend more time and dive into these things isn't always feasible in the clinic setting.
371
00:33:49,090 --> 00:34:05,970
So knowing other ways that you can evaluate this information, but also not as a healthcare provider, the worst thing I could do is say, oh, that's not important and then just move on because I know that individual is going to still have that circulating around in their brain, whatever their question was or the belief.
372
00:34:06,430 --> 00:34:07,830
And now they don't know who to trust.
373
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More often than not, they're going to take action and just not tell me next time.
374
00:34:13,110 --> 00:34:14,469
And that can be super unsafe.
375
00:34:14,989 --> 00:34:30,070
What are some things that, closing thoughts maybe that you have, other conversation points that we didn't cover that you've come across in your research that you think are, especially our patients with type 1 diabetes might find useful?
376
00:34:30,449 --> 00:34:31,090
Yeah, yeah.
377
00:34:31,909 --> 00:34:44,590
So I would say this, the main thing I would want people to know, so when it comes to misinformation, you should not feel like it is necessarily your fault that you fell for it, you believed it.
378
00:34:45,070 --> 00:34:59,910
I don't want people to feel a sense of like individual responsibility for that because what people need to understand is that there are well-researched algorithms and the people who post content know what they're doing to make you click.
379
00:35:00,110 --> 00:35:12,250
And the reason they know how to make you click is because the way we process information, just as people, it tends to follow very automatic patterns that you might not even be conscious of.
380
00:35:12,250 --> 00:35:16,850
So when you're faced with an overload of information, you can only take in so much.
381
00:35:17,030 --> 00:35:21,810
And when you're trying to find an answer, you don't have time to do your own research study, right?
382
00:35:22,130 --> 00:35:24,450
You just have 20 minutes on Google.
383
00:35:24,890 --> 00:35:29,870
So because of that, you're limited in how closely you can evaluate everything.
384
00:35:30,290 --> 00:35:41,410
And because of that, you're gonna have a tendency to focus on certain features of a message, focus on information from certain sources, information that makes you feel certain things, usually negative.
385
00:35:42,050 --> 00:35:49,890
You're gonna be drawn to these things not because there's an issue with you, but simply because as people, this is how we handle an overload of information.
386
00:35:50,530 --> 00:35:53,810
And when you go on social media and start scrolling, that's what that is.
387
00:35:53,850 --> 00:35:55,390
It's an overload of information.
388
00:35:55,770 --> 00:36:01,670
So I think the key takeaway is not necessarily to stop going on social media because that's not realistic.
389
00:36:02,030 --> 00:36:03,810
I think the main takeaway
390
00:36:03,810 --> 00:36:06,090
is if you find yourself
391
00:36:06,090 --> 00:36:08,130
coming across health information
392
00:36:08,130 --> 00:36:09,750
specifically on social media
393
00:36:09,750 --> 00:36:13,230
to just slow down and use that pause method
394
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because our natural,
395
00:36:15,930 --> 00:36:17,130
just the way our minds work,
396
00:36:17,270 --> 00:36:18,370
these cognitive mechanisms,
397
00:36:18,750 --> 00:36:21,450
they act so quickly and without our conscious thought
398
00:36:21,450 --> 00:36:22,730
that if you don't stop,
399
00:36:22,990 --> 00:36:25,070
you'll find yourself being influenced by this
400
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and not even really knowing how it happened.
401
00:36:27,410 --> 00:36:40,550
So I think the key takeaway is one, like I said, it's not something that's wrong with you, but two, the only way to really get around it is just to slow down and really try to think it through a little bit more.
402
00:36:40,790 --> 00:36:46,410
I think that's so important and especially in our hyper fast-paced world that we're in, right?
403
00:36:47,670 --> 00:36:50,330
Everybody's stressed out, limited on time.
404
00:36:50,890 --> 00:36:52,790
So I agree with you.
405
00:36:52,850 --> 00:36:58,070
I don't think the information, the idea is that you're going to be immune to all of the information that's out there.
406
00:36:58,250 --> 00:37:12,270
It's maybe becoming a little bit better at recognizing it and assessing whether something we should pause or if it makes sense for us to take action on whatever it may be or our belief in X, Y, Z.
407
00:37:12,470 --> 00:37:13,630
I think that's super smart.
408
00:37:14,050 --> 00:37:14,150
Yeah.
409
00:37:14,270 --> 00:37:19,490
So I'll give one more example of a patient who I'm so glad that they trusted me.
410
00:37:20,030 --> 00:37:24,790
They came to me and said, I don't think I need my bolus insulin anymore.
411
00:37:25,110 --> 00:37:30,750
Like I haven't taken insulin for my meals in like three days now and my blood sugar is perfect.
412
00:37:31,210 --> 00:37:36,310
This is someone with type one diabetes and I was at first like, what do you mean you're not taking your insulin?
413
00:37:36,750 --> 00:37:41,090
But I took a moment to actually ask more questions to be curious.
414
00:37:41,750 --> 00:37:48,030
And what I realized is that they had mistakenly increased the dose of their long acting insulin.
415
00:37:48,410 --> 00:37:57,010
And because they eat a very low carb diet, it seemed like they didn't need to bolus for their food anymore because they actually had more insulin than they needed in the background.
416
00:37:57,390 --> 00:38:04,410
But because they trusted me to ask the question and we had that discussion, we're able to help them be safe.
417
00:38:04,670 --> 00:38:05,890
Why is that a problem, right?
418
00:38:06,090 --> 00:38:09,910
Let's say that this person posted on social media that, oh, look, I have type one diabetes.
419
00:38:10,090 --> 00:38:14,930
All I need is my long acting shot now and like a picture of their perfect blood sugar, for example, right?
420
00:38:14,970 --> 00:38:15,790
Like that's an extreme.
421
00:38:16,030 --> 00:38:26,590
Someone can take that and apply it to themselves and obviously not have the same outcome because they're a unique individual for themselves, but potentially cause harm.
422
00:38:26,730 --> 00:38:34,310
If that person stopped eating their usual predictable patterns, their blood sugars would have gone low and potentially severely so, right?
423
00:38:34,370 --> 00:38:39,470
Because they have more insulin than what's safe on board compared to their lifestyle, their carbs, all the things.
424
00:38:39,890 --> 00:38:44,710
So I think that kind of wraps up the message that we have here, right?
425
00:38:44,830 --> 00:38:48,470
So one person's experience is just that, their own experience.
426
00:38:48,730 --> 00:38:55,610
We can gain information and value from it, but we should look at these types of messaging with the pause method.
427
00:38:55,990 --> 00:38:56,910
Who's it coming from?
428
00:38:56,990 --> 00:38:57,970
What do they want from me?
429
00:38:57,970 --> 00:39:01,230
Is this like evidence-based or actionable or is it just more entertainment?
430
00:39:01,810 --> 00:39:12,010
And then knowing when and how to communicate with your healthcare team and seeking out more people to be part of that team if you're not getting the answers that work for you.
431
00:39:12,310 --> 00:39:18,690
Keira, thank you so much for your time and your experience and this great topic.
432
00:39:19,250 --> 00:39:24,630
I'm so excited that I was able to experience your talk firsthand at the conference.
433
00:39:25,050 --> 00:39:26,410
Yeah, thank you for having me.
434
00:39:26,410 --> 00:39:28,290
It was so great, so great talking to you.
435
00:39:28,550 --> 00:39:32,010
Thanks for tuning in to Think Like a Pancreas, the podcast.
436
00:39:32,910 --> 00:39:39,250
If you enjoyed today's episode, don't forget to like, follow, or subscribe on your favorite podcast app.
437
00:39:39,790 --> 00:39:46,410
On behalf of Think Like a Pancreas, the podcast, I'm Gary Scheiner, wishing you a fantastic week ahead.
438
00:39:46,930 --> 00:39:49,490
And don't forget to think like a pancreas.