INFORMAZIONI SU QUESTO EPISODIO
Could experimental gene therapy change what’s possible for children with Hunter syndrome, also known as MPS II? In this episode, a father describes his son’s gene therapy treatment journey and reports his progress. We discuss how the therapy works, the clinical-trial process, and why access remains limited.
00:00 — intro
01:59 — Hunter syndrome and the gene therapy approach
04:09 — Ollie’s treatment journey
06:12 — Early signs and follow-up after treatment
10:03 — Trial access and eligibility
12:00 — Living with Hunter syndrome in the family
14:08 — Trial stages and access challenges
16:00 — Screening, early diagnosis and support
18:13 — Questions about U.S. trials and what comes next
Inglese
Stati Uniti
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