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Cerca gli episodi passati di Beyond the Diagnosis: Duchenne Perspectives.

ALTRI EPISODI IN QUESTO PODCAST

Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor. Co-Host:  Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer Guests:   Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respirat…

Love Without Limits

On this episode of Beyond the Diagnosis, we’re talking all things love, partnership, and the real-life magic that happens when two people choose each other. We’re joined by two wonderful couples who bring heart, humor, and honesty to the conversation. Pat Moeschen and his wife, Vanessa—a duo who pr…
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more. Guest speakers: Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne Shelley Coskery…
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all. Guest Speakers: Annie Tulkin, MS, Founder and Director, Accessible College, LLC James Daniels, III,  University of Georgia graduate, Bachelor'…
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