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In this episode, I talk with Bill Barton—dad to Lucas, who has Duchenne muscular dystrophy. We get real about the painful weight of a degenerative diagnosis and how it doesn’t just affect the child, but reshapes the entire family. Bill shares what it's like to parent in a world where control slips …
Joel Keck joins me on Disabled Expectations to share his journey as a dad to Cade, who was born with Dandy-Walker and Joubert syndrome. We talk about life in the NICU for 22 days, the tough choices families face in times of crisis, and how fatherhood has reshaped his view of life, faith, and streng…
In this episode of Disabled Expectations, I sit down with Cameron Kinney, dad to Wells, who has Dandy-Walker Syndrome. We dive deep into the importance of being open and honest as dads, the mental and emotional weight of raising a medically complex child, and the challenges of multiple extended hos…
In this episode of Disabled Expectations, I sit down with Jeff Weir, a dad whose son Landon lives with Schaaf-Yang Syndrome, an extremely rare genetic condition. Jeff opens up about the joys, heartbreaks, and traumatic events their family has faced both in and out of the hospital. This is a raw, h…
Sanggahan: Podcast dan karya seni yang disematkan pada halaman ini berasal dari disabledexpectations, yang merupakan milik pemiliknya dan tidak berafiliasi atau didukung oleh Listen Notes, Inc.