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Aaron is 33 and was diagnosed a year and a half ago with vascular Ehlers Danlos Syndrome (vEDS). He tells us his story of diagnosis and events that he has experienced so far. He also tells us about his father’s story with vEDS, which was undiagnosed when he passed away two years ago.
This interview was done in person over the weekend that the vEDS collaborative met in Seattle.
To make a donation to the vEDS Collaborative, https://app.mobilecause.com/vf/vEDS
If you would like to share your story with VEDS on this podcast, reach out to me here. I look forward to hearing from you!
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Today, we’re going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In today’s episode, she is returning to the show to talk about her recent experience with a bowel perforation and resulting complications.
Bella can b…
It’s been a minute, and I am excited to get back to the show. If you’re interested in sharing your story on the next season, please let me know by filling out this form. https://calendly.com/d/z7h-2cc-g33
Look forward to talking with you soon!
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Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz syndrome type 2, and also revealed that Carlos has Loeys-Dietz syndrome, mosaically.
Quick no…
Today, we’re going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically and emotionally, how she handled the information of two VUS’s, or Variants of Unknown Significance, a…
Today we’ll be talking to Amos Marsters, who grew up with the knowledge of VEDS and a family history. Amos lost his father at 6 years old, and then his brother at 12 years old. He has also had a number of VEDS medical events.
Find more information, including support groups and webinars, about …
سلب مسئولیت: پادکست و آثار هنری تعبیه شده در این صفحه متعلق به Katie Wright است که متعلق به صاحب آن است و به Listen Notes، Inc وابسته یا تایید نشده است.
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