درباره این اپیزود
Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives.
Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere
Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehttps://a.co/d/0aAgefYI
Ann Lamphere's Rare Disease Children's Book:
Pebbles' Golden Stripes: A Story of Uniqueness, Friendship, and Rare Disease Dayhttps://a.co/d/0677lJ3c
Jenny's FAP Children's Book
Life's a Polyp: with Zeke and Katie https://a.co/d/02eetaHy
Life's a Polyp Foundation is a nonprofit 501(c)3 that works to empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options.
Through this we aim to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.
A Daughter's Love Podcast is housed under Life's a Polyp Foundation. In it, Jenny and Amy heal grief through storytelling and exploring cancer, caregiving, and more.
Find more at www.LifesaPolyp.org and @LifesaPolyp across Social Media Platforms
#LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome #FamilialPolyposis #Coloncancer #ColorectalCancer #HereditaryCancer #AttenuatedFAP #FAP #AFAP #Nonprofit #Podcast #Chronicillness #Cancer #Panel #Advocacy
