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Did you know that you are likely to die 20 years younger if you have a learning disability. Did you know that the great 10 year NHS Plan mentions learning disability 0 times? In their latest podcast Niall and Roy seek to understand the dire state of health support for individuals with learning disabilities and their families. Their guest is Professor Jim Blair, a nurse and academic who has campaigned relentlessly for the 1.5 million or so people with a learning disability in the UK. In a fascinating discussion, Jim lets us into a world that is not understood by professionals or the wider public. It is a world where individuals and their families are not seen as having worth and where services are not shaped by those who use them; and where abuse and scandals will persist until this is tackled head on. Jim also highlights those with profound learning disabilities – who cost millions to look after with 24/7 care and who he describes as the hidden among the hidden. Learning disability nursing is in sharp decline yet this champion of change says to improve their health, learning disability patients need these advocates as they need services that are developed by them and their families, and staff who are trained by users and their families.
