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What happens when personal trauma transforms into powerful advocacy? Fabiana Bacchini, Executive Director of the Canadian Premature Babies Foundation, takes us on a journey through her evolution from NICU parent to healthcare changemaker through the lens of digital storytelling.
The conversation reveals the unique power of digital stories to transcend traditional limitations. Unlike presentations that exist in one moment for one audience, digital stories live online, cross borders, translate across languages, and remain relevant for years. They protect storytellers from repeatedly reliving trauma while maximizing impact and creating space for multiple perspectives – including those of siblings and patients themselves.
Whether you're a healthcare professional seeking to understand patient experiences, a parent navigating your own medical journey, or an advocate looking for powerful tools to drive change, this episode illuminates how personal narratives can reshape healthcare from the inside out. Listen now to discover how digital storytelling is revolutionizing patient advocacy and transforming healthcare one story at a time.
Key Messages
- Digital stories have unique power to convey the emotional reality of NICU experiences
- Fabiana's own story begins with performing CPR on her son when "no one came" after calling for help
- Family integrated care research empowered her as a parent and improved her son's outcomes
- Digital stories reach audiences beyond conference rooms and remain impactful over time
- Parent stories consistently receive the highest ratings in conference evaluations
- Creating opportunities for siblings and patients to tell their own stories offers valuable perspectives
- Digital storytelling allows advocates to share impactful experiences without repeatedly reliving trauma
Other Links Mentioned
- Watch Fabiana's digital story
- Watch Petya's story from CPBF's launch event Building Resilience Together
- Watch Alice's story from CPBF's Preemie Chat: The Importance of Sharing your Story
- Read this episode's blog post
- Watch the Looking Back video about Ep 26 with Dr. Peter Rosenbaum
Learn more about Fabiana Bacchini here.
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