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اپیزودهای قبلی Beyond the Diagnosis: Duchenne Perspectives را جستجو کن.

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The Sibling Experience

Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more. Guest speakers: Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne Shelley Coskery…
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all. Guest Speakers: Annie Tulkin, MS, Founder and Director, Accessible College, LLC James Daniels, III,  University of Georgia graduate, Bachelor'…
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor. Co-Host:  Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer Guests:   Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respirat…
سلب مسئولیت: پادکست و آثار هنری تعبیه شده در این صفحه متعلق به Jett Foundation است که متعلق به صاحب آن است و به Listen Notes، Inc وابسته یا تایید نشده است.