ACERCA DE ESTE EPISODIO
We're overjoyed to welcome Daniel DeFabio to the studio this week. We speak about his son Lucas, who had Menkes Disease, and about the stages of grief, paying it forward, the work he's doing on Global Genes and the creating of The Disorder Channel.
Menkes Disease letters + numbers: ATP7A
globalgenes.org/
https://www.thedisordercollection.com/
Inglés
Estados Unidos
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