ACERCA DE ESTE EPISODIO
Being a parent or patient partner can mean a lot of things. In this episode, we go inside the Siden Research Team to find out what it actually looks like when partnership is done differently.
Candice Barrans joined the Siden Research Team as a parent partner after her son was diagnosed with Down syndrome. She came with questions about how parent partnership works, and ended up doing research about it. With research coordinator Anne-Mette Hermansen and student research assistant Gabriel Zamma, we explore what embedded partnership means in practice, what happens when a parent brings a perspective no one else on the team has, and what it means to be recognized not just as a patient's parent, but as a whole person.
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