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In this episode, I talk with Bill Barton—dad to Lucas, who has Duchenne muscular dystrophy. We get real about the painful weight of a degenerative diagnosis and how it doesn’t just affect the child, but reshapes the entire family. Bill shares what it's like to parent in a world where control slips …
In this episode of Disabled Expectations, I sit down with Cameron Kinney, dad to Wells, who has Dandy-Walker Syndrome. We dive deep into the importance of being open and honest as dads, the mental and emotional weight of raising a medically complex child, and the challenges of multiple extended hos…
In this episode of Disabled Expectations, I sit down with Jeff Weir, a dad whose son Landon lives with Schaaf-Yang Syndrome, an extremely rare genetic condition. Jeff opens up about the joys, heartbreaks, and traumatic events their family has faced both in and out of the hospital. This is a raw, h…
In this episode of Disabled Expectations, we sit down with Brian, a father whose son Chris has cerebral palsy. Brian shares his powerful journey of advocating for his son, the importance of community, and the life-altering experience of adoption. We dive into the honest struggles and triumphs of b…
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