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In light of the recent and unexpected passing of our longtime host, Jeremy Holden, Connecting ALS is taking a pause to regroup. During this time, we’ll be revisiting impactful past episodes that continue to resonate with the ALS community.
In today’s episode, which first aired on August 4th, 2022, Jeremy talks to Maceo Carter and Heather Ansley from the Paralyzed Veterans of America about the ins and outs of traveling with a disability – particularly the challenges of traveling by air.
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OTROS EPISODIOS EN ESTE PODCAST
This week, Jeremy catches up with Brooke Eby, a social media influencer living with ALS, about her efforts to raise awareness of ALS and critical funding for ALS research, and how she uses levity and humor along the way.
Find ways to follow Brooke’s journey at https://hoo.be/limpbroozkit
Check …
This week Jeremy explores some of the barriers insurers establish that make it difficult to use insurance for essential health care needs, and talks to Kara Nett Hinkley, National Vice President of State Advocacy at The ALS Association, about some of the work being done to break down those barriers…
This week, Jeremy talks to Dr. Kelly Gwathmey, Chair of Neuromuscular Neurology at Virginia Commonwealth University, about recent research showing racial disparities in the time it takes to confirm an ALS diagnosis.
Learn more about the research conducted at VCU at https://www.sciencedirect.com/sci…
This week, Jeremy kicks off National Wellness Month with Melissa Enfinger from The ALS Association’s Care Services team.
To participate in research into the mental health and wellness needs of people living with ALS, go to https://milwaukee.qualtrics.com/jfe/form/SV_4I9CXsunR8LrTYa
This episode i…
This week, Jeremy explores some of the ongoing fights to make insurance work more effectively for people living with ALS. He is joined by Shannon Todd from The ALS Association’s Care Services team and ALS advocate Katie Adams, who updates us on her ongoing fight for insurance coverage of her power …
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