ÜBER DIESE EPISODE
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more.
Guest speakers:
- Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne
- Shelley Coskery, RN, Pediatric Nurse Practitioner at Children’s of Alabama
- Kim Rae , Fierce Advocate, mom to an individual living with Duchenne, Change Agent
Englisch
Vereinigte Staaten
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VERGANGENE FOLGEN SUCHEN
Vorhandene Folgen von Beyond the Diagnosis: Duchenne Perspectives durchsuchen.
WEITERE EPISODEN IN DIESEM PODCAST
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor.
Co-Host:
Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer
Guests:
Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respirat…
Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all.
Guest Speakers:
Annie Tulkin, MS, Founder and Director, Accessible College, LLC
James Daniels, III, University of Georgia graduate, Bachelor'…
On this episode of Beyond the Diagnosis, we’re talking all things love, partnership, and the real-life magic that happens when two people choose each other.
We’re joined by two wonderful couples who bring heart, humor, and honesty to the conversation. Pat Moeschen and his wife, Vanessa—a duo who pr…
Rechtliche Hinweise: Der auf dieser Seite eingebettete Podcast und das Bildmaterial stammen von Jett Foundation, das Eigentum seines Eigentümers ist und nicht mit Listen Notes, Inc. verbunden ist oder von diesen unterstützt wird.
BEARBEITEN
Vielen Dank, dass Sie uns helfen, die Podcast-Datenbank auf dem neuesten Stand zu halten.
