00:00:00Chapter One: Helen
00:03:35Chapter Two: The Convening
00:14:59Chapter Three: Naomi's Circle
00:16:53Chapter Four: Proceed
ÜBER DIESE EPISODE
Helen Park has stage III ovarian cancer and a spreadsheet with 412 papers in it. She has fired oncologists, found better care, and learned to run her own architecture because the system was not going to run it for her.
When she learns that Mara Whitfield has been helping coordinate her care from a distance, Helen does not ask for an apology. She asks a better question: how many of us are there?
Mara convenes the Principals for the first time: Kwame in Cambridge, Yolanda in Boyle Heights, Wen in Pikeville, Loretta in Window Rock, June in Wyoming, and Helen in California. They tell each other what the architecture has done to them — and what they have had to become to survive it.
Then Mara names what has been forming all along.
The Sewing Circle.
Meanwhile, Naomi begins a circle of her own for caregivers — the people who have been holding everything for the people who are patients.
Hermes logs the meeting. The architecture prepares to respond.
Themes:
Patient sovereignty, oncology, caregiver identity, the Sewing Circle, mutual aid, collective power, institutional containment
Tags:
cancer care, ovarian cancer, patient advocacy, caregivers, Sewing Circle, healthcare reform, AI medicine, care networks, Health 4.0, BEDSIDE, The Pulse
BEDSIDE: The Pulse is a work of speculative health-system fiction written and narrated by Robin Blackstone, MD. It is not medical advice.
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IN DIESER FOLGE
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WEITERE EPISODEN IN DIESEM PODCAST
Two weeks after his stent, Kwame Mensah is told he is doing extraordinarily well. But when he asks who is actually managing his care, the answer is devastatingly simple: he is.
Naomi Tran-Mensah begins making the calls. Primary care, cardiology, cardiac rehab, lipid clinic, dietitian, pharmacy, in…
In Window Rock, Loretta Begaye receives a notification: the wellness pilot that provided her continuous glucose monitor has ended, her device will stop transmitting, and her historical data may be retained for research.
She tries to export it. She cannot. She tries to delete it. She cannot. Then s…
In Boyle Heights, Yolanda Ortiz is eight months pregnant, frightened, and developing signs of severe preeclampsia. Her clinic appointment is weeks away. Her calls have not been answered. But Aurelia Vega, a midwife connected to a quiet network of women across the country, knows what to do.
That sa…
Wendell “Wen” Hartfield has lived with back pain for twenty-two years. A former coal miner, a husband, a father, and a man marked by the opioid crisis, Wen has not taken anything stronger than ibuprofen since 2014.
When his pain becomes unbearable, his doctor refers him for a non-opioid pain proce…
PULSE — EPISODE 1: THE PULSE
Season 1 of Bedside.
A pulse is what they call it when the heart, after a moment of silence, beats again. Kwame Mensah ran five miles on a Tuesday morning in March. He was forty-two years old. By every external metric American medicine knows how to read, he was well. …
Rechtliche Hinweise: Der auf dieser Seite eingebettete Podcast und das Bildmaterial stammen von Robin Blackstone, MD, das Eigentum seines Eigentümers ist und nicht mit Listen Notes, Inc. verbunden ist oder von diesen unterstützt wird.
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