Losing My Sight to Stargardt's Disease

Six weeks ago I sat in a hospital and got told my sight had deteriorated significantly. Today I went back for the follow-up, and I already knew it wasn’t going to be good news.

This is what I recorded that morning, before I left the house.

I talk about the strange grief of losing your sight slowly rather than all at once — how you don’t just grieve it once, you grieve it over and over, every time there’s another appointment, another bit gone.

I talk about the affirmations and yoga philosophy I’ve been leaning on all week to get through today. And I talk about why it’s okay to not feel strong, even when people keep telling you that you are.

I’ll follow up once I know what today’s appointment actually meant.

If this is your first time here, I’m a yoga teacher living with Stargardt’s disease. You can find more of my story — and the podcast, Seeing Within — through the links below.