ABOUT THIS PODCAST 🔗
Fondation Ipsen and AAAS/Science magazine are partners for the "Life & Science" series of webinars. For the first time, all of the episodes are available as podcasts.
Everytime, the invited scientists, all internationaly recognized experts, debate and share knowledge and expertise. The topics are wide but always focused on well-being, health and society.
Hosted on Ausha. See ausha.co/privacy-policy for more information.
Everytime, the invited scientists, all internationaly recognized experts, debate and share knowledge and expertise. The topics are wide but always focused on well-being, health and society.
Hosted on Ausha. See ausha.co/privacy-policy for more information.
Update frequency:
every 52 days
Average audio length:
61 minutes
English
United States
34 episodes
since Oct. 7, 2020
episodic
LATEST EPISODE 🔗
Public–private partnerships also play a key role in closing the
funding gap. They can facilitate knowledge-sharing, resource-pooling,
and joint efforts toward finding effective treatments and cures.
Advocating for international cooperation is another key strategy.
Establishing global networks a…
SEARCH PAST EPISODES
Search past episodes of Life and Science.
PREVIOUS EPISODES 🔗
Advocacy in rare disease is complex and challenging, but there are
effective methods that advocates can use to communicate with the public.
In this panel discussion, experts in communication, public relations,
and influencing will discuss strategies and tactics to advance advocacy
for rare dise…
In this podcast, first episode in the 2023 Science/AAAS Fondation Ipsen series on advocacy in rare disease, our guests examine the advocacy landscape, asking: what does advocacy entail,
who are advocates, what organizations are involved with rare disease
advocacy, what determines how umbrella org…
"The profoundly personal side of rare disease: Humanizing the therapeutic journey of patients" : a free podcast recorded during a webinar organized by Science Magazine and Fondation Ipsen.
Health care systems are not equipped to provide the psychological and social support patients need. Genetic c…
During this podcast (recorded during a webinar co-organized by Fondation Ipsen and Science Magazine), our guests (all experts in rare disease) discussed about
the need of patient registries.
There is no international database on rare disease genotypes, no
standardized nomenclature for phenotypes…
We are on the brink of new solutions that include accessing specialized
care through telemedicine, diagnosis through mail-in specimens, and
computer-aided remote phenotyping. This webinar discusses how new
systems and technologies can close the chasm that prohibits those with
rare diseases livi…
New drug design methodologies allow us to contemplate designer medicines for
very small groups of patients or even individuals. The future holds
promise for the rare disease community because modern biotech can build
bespoke (customized) therapies. Are we at the dawn of personalized
treatments …
This podcast is adapted from a webinar launched by Science Magazine, with the support of Fondation Ipsen.
Innovation hubs could provide a viable option to leverage common goals and opportunities, providing shared protocols for handling phenotypic, clinical, and genetic data, while also prioritiz…
Rare disease detection is an interdisciplinary and international
problem. Building a solution must include internationally agreed-upon
diagnostic criteria for each rare disease, patient access to diagnostic
technologies, and effective communication strategies between health care
workers and pat…
Pick any two humans on Earth and analysis will show that their DNA is around 99.9% identical. But that tiny 0.1% difference, in combination with our environment, is what makes us unique. We each have a singular experience of the world—the interactions we have, the food we eat, the diseases we suffe…
Disclaimer: The podcast and artwork embedded on this page are from Life and Science, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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