ABOUT THIS PODCAST 🔗
In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases.
At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.
At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.
Update frequency:
every 104 days
Average audio length:
29 minutes
Guest interviews
English
United Kingdom
17 episodes
since May 18, 2021
episodic
LATEST EPISODE 🔗
In the latest episode of the “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, speaks with Simon Anthony Richey, a patient living with idiopathic pulmonary fibrosis (IPF).
Simon’s journey into diagnosis was unusual – what started as a seemingly minor symptom…
SEARCH PAST EPISODES
Search past episodes of FIECON Patient Perspectives.
PREVIOUS EPISODES 🔗
In the latest episode of “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, talks to Chris Wade, a patient living with chronic lower back pain, whose life changed after a car accident.
In this episode of, Daniel Evans , HEOR Associate at FIECON, speaks with Charlotte Keys, a patient advocate, whose son Lucas was diagnosed with Citrullinaemia Type 1, and Jonathan Alexander Gibson, Campaigns Lead at Metabolic Support UK .
In this episode, Tyler Piazza, BD Director at FIECON, hosts an insightful interview with Kevin Wake, CMR, CHW, M.S., a sickle cell disease patient advocacy leader and a health outcomes industry expert.
Kevin, who was diagnosed with sickle cell disease at nine months old, is now the president of…
In this episode Karl Freemyer, BD director at FIECON, is speaking with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive.
Emma is a resilient breast cancer survivor who was diagnosed with stage 4 breast cancer five years ago at the age of …
In this episode Karl Freemyer, BD director at FIECON, is having a conversation with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive.
Emma is a resilient breast cancer survivor who was diagnosed with stage 4 breast cancer five years ago …
Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina.
Listen to FIECON's latest 'Patient Perspectives' podcast with Lauren Weinberg, Senior A…
In this podcast, Lily Mumford talks to Lauren Weinberg, Senior Associate at FIECON, about her patient journey, experience living with LHON, and how losing her vision has impacted her life.
Leber hereditary optic neuropathy (LHON) is a rare condition that primarily affects young adults. It causes p…
In this podcast, David Robins talks to Lauren Weinberg, Senior Associate at FIECON, about the patient journey, his experience as the father of Lexi who lives with Fibrodysplasia Ossificans Progressiva (FOP), and as a family after the FOP diagnosis.
FOP is an ultra-rare genetic condition and is one…
Erika Stariha is the mother of the first child in Slovenia diagnosed with SATB2-associated syndrome (SAS), as well as the founder and president of SATB2-Europe. SATB2 Europe's aim is:“To improve quality of life for individuals with SATB2 syndrome through discovery and development of targeted …
Disclaimer: The podcast and artwork embedded on this page are from FIECON, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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