ABOUT THIS PODCAST 🔗
Our experiences shape more than our health. They shape our relationships, our identity, and the way we move through the world. In Season 3, Unpacking the Gift of Life explores the intersection of health, humanity, and connection—with hope, honesty, and hard-won insight to navigate care, find purpose, and live well alongside chronic illness.
Hosted by patient advocacy leader and two-time transplant recipient Valen Keefer, every episode is a reminder that none of us are navigating it alone. Through real stories from patients, transplant survivors, healthcare providers, researchers, and advocates, we share heartfelt conversations about building resilience, finding connection, and discovering the perspectives that make life so beautiful.
Update frequency:
every 42 days
Average audio length:
38 minutes
Has sponsors
English
United States
17 episodes
since April 1, 2024
episodic
IN THIS PODCAST 🔗
LATEST EPISODE 🔗
"Now what?" It's the question Valen asked 25 years ago as an 18-year-old newly under the care of nephrologist Dr. Terry Watnick, and it's the same question she's answering in this episode for anyone facing a new kidney disease diagnosis today. Valen reunites with Dr. Watnic…
SEARCH PAST EPISODES
Search past episodes of Unpacking the Gift of Life.
PREVIOUS EPISODES 🔗
In recent years, new KDIGO guidelines for both IgA nephropathy (IgAN) and PKD have been released – but what does this mean for patients and their loved ones? In this episode, Valen talks with Mike Spigler, Chief Program Officer and Vice President of Strategic Partnerships, Research and Education at…
Behind John Fluevog's decades of iconic shoe design is a personal story of kidney disease, transplant, and gratitude. Valen talks with John about his creative journey, his diagnosis of polycystic kidney disease, and the transplant that changed his outlook and inspired him to create shoes carry…
The future of rare kidney disease treatment is full of hope and innovation. Valen chats with Dr. Jill Green and Dr. Pranav Garimella about groundbreaking research and why the patient voice matters when working with advocacy groups and industry to shape future treatments. Leave feeling inspired and …
Patients are key to advancing rare disease treatment. IgA nephropathy (IgAN) patient Russ Roberts and his nephrologist Dr. Arnold Silva discuss the role of clinical trials in rare kidney disease research and how patients and providers can work together to shape the future of treatment. Get practica…
Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on bui…
Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on bui…
Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strate…
Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strate…
Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to use your voice to drive change and support the rare dis…
Disclaimer: The podcast and artwork embedded on this page are from Valen Keefer, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
PODCAST SEARCH ENGINE
You can use our website to search 3,827,280 podcasts and 196,190,741 episodes by people, places, or topics.
If I have seen further than others, it is by listening to podcasts and standing upon the shoulders of
giants.
‐ Isaac "Llamacorn" Newton
SEARCH PAST EPISODES
Search past episodes of Unpacking the Gift of Life.
CLAIM THIS PODCAST
Why to claim podcasts?
If you are a podcaster, the best way to manage your podcasts on Listen Notes is by claiming your Listen Notes
podcast pages.
It is a great, free way to engage the podcast community and increase the visibility of your podcasts.
After claiming your Listen Notes podcast pages, you will be able to:
✓
Manually refresh the RSS feed to sync up
✓
Get a verified badge (
✓
) alongside with your podcast name on Listen Notes
✓
Post classified ads for sponsorship,
guests, co-hosts,
cross-promotion...
✓
Respond to listener comments on Listen Notes
✓
Use speech-to-text techniques to transcribe your show and
edit transcripts
✓
Improve the presence of your podcasts, e.g., self-service
podcaster interview...
✓
If you share your Listen Notes page and at-mention @ListenNotes
on X (formerly Twitter),
our official X (formerly Twitter) account will retweet to promote
your show to our followers.
Coming soon:
◯ Self-service promotion on Listen Notes
◯ Track your podcast stats on Listen
Notes, e.g., listens, page
views...
◯ Manage episodes
EDIT
Thank you for helping to keep the podcast database up to date.
