The Shadow Effect

What happens when bleeding becomes so familiar that it no longer feels worth reporting?

In the premiere episode of The Bleeding Edge, host Patrick James Lynch brings together patients, caregivers, clinicians, and researchers to explore the realities of living with Glanzmann thrombasthenia. Through personal stories and expert insight, they reveal how a lifetime of adapting to bleeding can quietly shape everyday life while much of its true burden remains unseen.

Featuring Eliza Van Sweden, Amy Owen-Wyard, Kate Khair, and Dr. Guy Young, The Shadow Effect examines why understanding GT means looking beyond the bleed itself and listening to the experiences that too often go undocumented.

Because before we can change the future of GT, we first have to see what has been there all along.

Featuring:

Eliza Van Sweden Amy Maiard Kate Khair Dr. Guy Young

Presenting Sponsor:

Hemab Therapeutics, visit hemab.org to learn more

1. One day at a time: Life with Glanzmann thrombasthenia – Qualitative results from the GT 360 study

2. UK Haemophilia Society

3. CHES Foundation

4. Glanzmann Thrombasthenia Research Foundation

5. Glanzmann Thrombasthenia Facebook Support Group

6. EquiPath Analytics

7. Haemnet

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