এই এপিসোড সম্বন্ধে
On this episode of Beyond the Diagnosis, we’re talking all things love, partnership, and the real-life magic that happens when two people choose each other.
We’re joined by two wonderful couples who bring heart, humor, and honesty to the conversation. Pat Moeschen and his wife, Vanessa—a duo who prove that teamwork (and a good laugh) can get you through anything. And joining them are Matt Stelmach and his fiancée, Mary Griffin, who show us what commitment, communication, and planning for the future really look like.
Together, they're diving into dating, marriage, caregiving, boundaries, and building a love story that’s truly their own.
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অতীতের এপিসোডগুলি অনুসন্ধান করুন
Beyond the Diagnosis: Duchenne Perspectives এর অতীতের এপিসোডগুলি অনুসন্ধান করুন।
এই পডকাস্টের অন্যান্য পর্বগুলি৷
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor.
Co-Host:
Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer
Guests:
Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respirat…
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more.
Guest speakers:
Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne
Shelley Coskery…
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all.
Guest Speakers:
Annie Tulkin, MS, Founder and Director, Accessible College, LLC
James Daniels, III, University of Georgia graduate, Bachelor'…
Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
দাবি পরিত্যাগ: এই পৃষ্ঠায় এম্বেড করা পডকাস্ট এবং আর্টওয়ার্ক Jett Foundation থেকে এসেছে, যা এর মালিকের সম্পত্তি এবং Listen Notes, Inc দ্বারা অনুমোদিত বা অনুমোদিত নয়৷
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পডকাস্ট ডেটাবেস আপ টু ডেট রাখতে সাহায্য করার জন্য আপনাকে ধন্যবাদ।
