You, Me & Rare Disease ep. 1 of 2
Welcome to You, Me & Rare Disease episode 1 of 2 – as a special breakout theme to You Me & Muscular Dystrophy to acknowledge rare diseases day 28th of February.
We begin this fabulous series with with a discussion with from Nicole Millis, CEO of Rare Voices Australia. Kathleen Benham, Kelly Berger,…
Ep.26- Behind the Wheels: A New Era of Advocacy (feat. Kelly and Avery)
Grab your favorite mug and settle in, because today’s brew is served extra bold. On this episode of The Chronic Brew, we are joined by the powerhouse duo behind the Wheel Talk Podcast: Kelly Berger and Avery Roberts.
Kelly and Avery aren't just living with an ultra-rare form of congenital muscular…
Inclusion in the entertainment industry W/ Avery Roberts & Kelly Berger
Before we jump in, I just want to give a quick shoutout to Brandon Lingle for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability and inclusion in the entertainment industry, and I’m really excited for this one.
GUEST BIO: Avery…
196 - The Power of Self-Advocacy in an Inaccessible World with Kelly Berger and Avery Roberts
In this episode of The Inclusive Dad podcast, host AAron welcomes Kelly Berger and Avery Roberts, disability and rare disease advocates living with congenital muscular dystrophy. Together, they share powerful insights on what true inclusion looks like—moving beyond labels, breaking down barriers, a…
Now Scanning: Price Check On Access in the Workplace
From barcode scanners and snack aisles to awkward customer moments, this episode takes you behind the self-checkout counter with Caden Sanchez, a wheelchair user balancing work, college, and everyday life. We chat about what it’s really like working in grocery retail, navigating accessibility on th…
Our 6/6 Moment: World Collagen VI Awareness Day
In this special World Collagen VI Awareness Day episode, we celebrate the global Collagen VI-related dystrophy (COL6-RD) community while exploring the power of visibility, storytelling, advocacy, and connection. Kelly and Avery share what June 6 means to them as individuals living with COL6-RD, dis…
Wave the Flag: Disability Pride & Being an Ally
July is Disability Pride Month, and in this episode, we’re celebrating Disability Pride as visibility, dignity, and community. It’s about honoring every version of our bodies, minds, and lived experiences and refusing to be reduced to something to fix, pity, inspire, or ignore. It’s a reminder that…
#87 Redefining Disability with Congenital Muscular Dystrophy
In this episode of It Happened To Me, hosts Cathy Gildenhorn and Beth Glassman are joined by Kelly Berger and Avery Roberts, two women living with congenital muscular dystrophy and the co-hosts of the podcast Wheel Talk.
Congenital muscular dystrophy, or CMD, is a rare group of genetic conditions …
049 - Congenital Muscular Dystrophy: Living Fully, In A World Not Built for You - Kelly Berger & Avery Roberts (The Wheel Talk Podcast)
In Episode 49 of The Survival Project, Jonathan is joined by Kelly Berger and Avery Roberts, hosts of the Wheel Talk Podcast, for an honest, funny and thought-provoking conversation about living with an ultra-rare form of congenital muscular dystrophy (CMD).
Kelly and Avery have lived with progress…
Wheel Talk Podcast: Kelly Berger & Avery R
Season 6, Episode 11: In conversation with Kelly Berger and Avery Roberts
About the duo: Kelly Berger and Avery Roberts are dynamic, empowered, rare disease warriors and disability champions who share their stories, spark conversations, and build a world that listens and activates real change. Th…
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