ОТНОСТНО ТОЗИ ЕПИЗОД
Jason Blain is a dad to two boys living with MPS II (Hunter Syndrome), a rare and exhausting disease.
In this episode, we talk about what it's really like to raise kids with severe disabilities—no sugarcoating. Jason opens up about the emotional toll, the fight to keep his marriage strong, and how hardship and gratitude somehow coexist in his world.
He doesn’t pretend to have it all figured out—but what he shares is honest, raw, and hopeful. You’ll walk away challenged and encouraged
📧 Contact: disabledexpectations@gmail.com
🙌 Sponsored by Certain Hope Community
🎙️ Available on YouTube, Spotify & Apple Podcasts
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ТЪРСЕНЕ на МИНАЛИ ЕПИЗОДИ
Търсене в минали епизоди на Disabled Expectations.
ДРУГИ ЕПИЗОДИ В ТОЗИ ПОДКАСТ
In this episode of Disabled Expectations, I sit down with Jeff Weir, a dad whose son Landon lives with Schaaf-Yang Syndrome, an extremely rare genetic condition. Jeff opens up about the joys, heartbreaks, and traumatic events their family has faced both in and out of the hospital.
This is a raw, h…
In this episode of Disabled Expectations, I sit down with Cameron Kinney, dad to Wells, who has Dandy-Walker Syndrome. We dive deep into the importance of being open and honest as dads, the mental and emotional weight of raising a medically complex child, and the challenges of multiple extended hos…
Joel Keck joins me on Disabled Expectations to share his journey as a dad to Cade, who was born with Dandy-Walker and Joubert syndrome. We talk about life in the NICU for 22 days, the tough choices families face in times of crisis, and how fatherhood has reshaped his view of life, faith, and streng…
In this episode, I talk with Bill Barton—dad to Lucas, who has Duchenne muscular dystrophy. We get real about the painful weight of a degenerative diagnosis and how it doesn’t just affect the child, but reshapes the entire family. Bill shares what it's like to parent in a world where control slips …
In this episode of Disabled Expectations, we sit down with Brian, a father whose son Chris has cerebral palsy.
Brian shares his powerful journey of advocating for his son, the importance of community, and the life-altering experience of adoption. We dive into the honest struggles and triumphs of b…
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