Listen First, Lead Together: Advocacy and Power Dynamics
Ronda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices, & design sustainable governance.
Summary
In this episode of Health Hats, host Danny van Leeuwen talks with Ronda Alexander, a community health advocate and skilled facilitator,…
Letter: Trust Me, I’m Skeptical
Letters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.
Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below.
Please comment an…
Danny van Leeuwen: Resilient Athlete
Host Mark Hochgesang huddles with the inspiring and relentlessly optimistic Danny van Leeuwen—athlete, nurse, storyteller, and champion for living fully with a chronic illness. Danny doesn’t just talk about resilience; he lives it daily with multiple sclerosis while still pursuing movement, connect…
Crutches, Caves, and Currents: Tubing in Belize
Health Hats walks & floats through ancient Maya caves in Belize with forearm crutches, teamwork, trust, and shared decision-making every step of the way.
Watch this episode on YouTube. Audio is published, but not the same
Podcast episode on YouTube
Summary
What does it take to go cave tubing…
S1, E37 - Danny van Leeuwen, MPH, RN, Health Hats: Patient's POV on AI Tools
Danny van Leeuwen is a nurse of 50 years, a multiple sclerosis patient, host of the Health Hats podcast, and a serial member of national outcomes panels at CMS, AHRQ, PCORI, and the National Academy of Medicine. He has tried more than 100 health apps and uses five. In this episode, he explains how …
S1, E38 - Reflections 5: How Specialized Does AI Have to Be to Actually Work?
In their fifth Reflections episode, Steve and Leon look back across six conversations (Matt Truppo at Sanofi, Ted Shortliffe, Barry Chaiken, David Hidalgo-Gato, and Danny van Leeuwen) to ask a sharper question: how specialized does AI have to be to actually work? The throughline is depth. The LLM i…
Endometriosis: A Web You Can Touch
Danny and Phee open their endometriosis series: how they met, Phee’s decade-long journey to diagnosis, and what this disease actually does to the body.
Click here to view the verbatim transcript
Click here to read the newsletter
Summary
Danny and Phee Marcial launch their co-produced series on …
The Gods Fight: Intro to Endometriosis Series w Phee Marcial
Phee Marcial’s artwork opens our co-produced endometriosis series: Armor, Light, and Power. A conversation about art, pain, and process.
Click here to view the verbatim transcript
Click here to read the newsletter
Summary
Phee created art; Health Hats was floored. They are well into co-produci…
100 Elephants, Same Blind Spot
My first-ever post (2012) meets 100 life-sized elephants on Commonwealth Ave. Episode 625. I still haven’t found the whole animal.
Click here to view the verbatim transcript
Summary
I revisit my first-ever blog post, a 2012 story about two strangers in wheelchairs, each certain the other had it …
Alone in a Dark Hospital Room, She Asked Claude
Using AI to track symptoms, weigh medication options, and advocate. Not a cure, a toolkit. An honest, careful path without handing over the wheel.
Summary
Health Hats reviewed Melissa Reynolds’ book on pregnancy in 2019, and they bonded over the fact that a man had blurbed it. Now she’s on to som…
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