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"Should I be joking at a time like this?"
That's the question then 33-year-old Brooke Eby asked herself when she uploaded her first piece of TikTok comedy in 2022, about being diagnosed with a terminal illness. Brooke built an audience of hundreds of thousands of people who were rooting for, and laughing with, her. Sometimes it got weird.
Brooke died due to complications with ALS earlier this month. She was 37.
In 2025, she talked to Endless Thread hosts Ben Brock Johnson and Amory Sivertson about how facing death changed her relationship with social media and online community. Show notes:
- Brooke Eby's TikTok, Instagram, and YouTube
- ALSTogether
- When Your Terminal Illness Makes You a TikTok Star (The New York Times)
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This episode was originally published on March 10, 2023.
In 2022, freshmen at the University of North Carolina at Chapel Hill got a new neighbor: an owl. What wasn't clear was whether the owl was trying to befriend them, or catch them.
Sometimes the owl seemed to be chasing students. Other times…
Grab your telescopes because this week on Endless Thread Ben and NPR Short Wave host Emily Kwong take us down two science-related internet wormholes. First, Emily introduces us to the intergalactic world of astronaut fan fiction, starring the crew of the 2026 Artemis II moon mission. Then, Ben take…
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