135: Invaluable Role of Social Support in Narcolepsy and Idiopathic Hypersomnia Care
Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice.In this episode, Julie Flygare, JD, president and chief executive officer of Project Sleep, shared her personal and professional insights into the critica…
Congressional Briefing on Sleep & Public Health - Sleep Insights Series Ep 13
On Tuesday, July 16th, 2024, Project Sleep proudly hosted “Awakening America: A Congressional Briefing on Sleep and Public Health” followed by a first-ever Sleep Screening event on Capitol Hill. Over 100 people attended Project Sleep’s events, with great interest from Hill staffers looking to learn…
217: Julie Flygare, President & CEO of Project Sleep: When Doctors Miss Your Sleep Disorder—and One Woman’s Stand for Change
BIO:Julie Flygare, JD, serves as President & CEO of Project Sleep. Flygare is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. In March 2022, she delivered the TEDx Talk, “What Can Yo…
Asking for Help
Morning Mantra: "Those mountains you are carrying you were only supposed to climb."Why is it that when we are dealing with a heavy load, we are so reluctant to ask for help?Sometimes asking for help or support is the strongest thing you can do. It requires you to be vulnerable. To open your heart…
Tracking My Sleep: Forget Everything I've Ever Said with Dr. Seema Khosla
In this episode
Why Neil abandoned Fitbit as the primary measurement tool for his sleep-experiment project
Seema Khosla’s box of sleep technology
AYO blue-light glasses and circadian timing
Why the timing of bright light matters as much as the light itself
Ravi Allada’s Major League Baseball j…
LEAKED! The Snooze Button - The Book!
In this episode
Why the podcast originally existed as the public research phase of The Snooze Button book
Neil reading three chapters of the raw 2020 manuscript
“Phillips Is an Ass” and the internal absurdity of a sleepless night
Clock-watching, bargaining, caffeine, meditation and sleep perfor…
Narcolepsy, or Wide Awake and Dreaming with Julie Flygare
In this episode
Why the familiar movie and sitcom version of narcolepsy is misleading
Julie’s first symptoms while she was in law school
Thinking difficulty with coursework meant she was not cut out for law school
Knees buckling with laughter — and the clue that finally led to the word cataplex…
Humans vs Sleep with Dr. Michael Grandner
In this episode
Why warmer mornings and earlier sunlight change Michael’s own sleep schedule
Light as one of the fundamental environmental signals shaping circadian biology
What “polyphasic sleep” actually means
The difference between a normal nap or biphasic schedule and extreme internet polyp…
Patient Advocacy in Sleep Medicine
In this episode of Talking Sleep, host Dr. Seema Khosla welcomes three patient advocates who are reshaping how sleep medicine is practiced and funded. Matt Horsnell, living with two sleep disorders and active as an author and panelist; Emma Cooksey, a patient-advocate and host of the Sleep Apnea St…
Narcolepsy: why you’ve been thinking about it all wrong
The sleep disorder has been the butt of jokes and a comedic plot point, but the reality of living with narcolepsy is anything but funny. Things could be about to change for people with the condition though, after the US Food and Drug Administration (FDA) approved the first ever drug to treat narcol…
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