# Mike Graglia
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Top podcast episodes featuring mike graglia.
#216 African American Ancestry with Nicka Smith
Nicka Smith (she/her), a pro genealogist with over 20 years of experience, joins DNA Today for our second to last episode of the year! She is the host of BlackProGen LIVE, a web series focused on genealogy and family history with a special focus on people of color.
Nicka Smith is a professiona…
#217 SynGAP1 with Mike Graglia and Elli Brimble
Patient advocate, Mike Graglia, and genetic counselor, Elli Brimble, join DNA Today for a conversation about SYNGAP1-related non-syndromic intellectual disability, a rare genetic disorder caused by a variant on the SYNGAP1 gene.
Mike Graglia has always worked on complicated problems – he can’t…
Ashley talks to SRF Co-founder Mike Graglia
Show Notes:
Ashley talks with SRF Co-founder and Syngap Dad Mike Graglia. Mike talks about founding SRF with his wife, Ashley Evans & raising a Syngapian child. He offers his best advice to new SYNGAP1 parents.
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Resea…
Mike Graglia, SRF Managing Dir. & SYNGAP1 Dad to Tony. Going back to school can be difficult. Tony's experience shows that it's so much harder for kids with SYNGAP1!
Show Notes
Going back to school is difficult for most kids and their families, but for those living with SYNGAP1 and other rare diseases, it is especially hard! Mike Graglia, SRF Co-Founder & Managing Director and Dad to Syngapian Tony, joins Ashley again to talk about a crisis his family experien…
Soiree: incredible, Boston: Fabulous & two todos before SYNGP-A-PALOOZA ‘22, NASHVILLE #S10e82
ATLANTA was an incredible event and a success for more reasons than you think
- Check out this video: https://www.youtube.com/watch?v=NEEob7CzlfY
- Family connection is everything
- Raised funds from Atlanta community, it’s us folks.
Real but not True: https://www.psychologytoday.com/us/blog/fi…
SYNGAP-A-PALOOZA ‘22, NASHVILLE & a bit more on ASOs #S10e81
ATLANTA: 11/12 https://cbo.io/bidapp/index.php?slug=syngap
Stoke Update on STK-001 Phase 1/2a studies https://investor.stoketherapeutics.com/news-releases/news-release-details/stoke-therapeutics-host-webinar-and-conference-call-present
PMC 11/14-15 https://www.personalizedmedicinecoalition.org/ev…
SYNGAP10 - Ep. 1 - 12 March 2021 - Mike Graglia updates Syngap Families on the work of SRF.
Mike's first episode! A quick update on the week in SYNGAP1, what the SynGAP Research Fund did this week on behalf of families.
- Engaged with a new BioPharma company interested in starting a program on SYNGAP1.
- Connected ANOTHER company with CIITIZEN.com/SYNGAP1 so that they can use the data …
The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia
ONCE UPON A GENE - EPISODE 211
The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia
Rare disease parents and front line advocates, Kim Nye and Mike Graglia, join this episode for a discussion about the unseen struggles of rare disease parenthood and …
How a Podcast Put This Rare Disease on the Map with Mike Graglia of CURE SYNGAP1
What does it take to build influence when the stakes are deeply personal—and the audience is scattered across the globe? In this episode, Anthony Shop sits down with Mike Graglia, Founder and CEO of Cure SYNGAP1, to explore how one father turned a devastating diagnosis into a global movement accele…
Mike Graglia, CURE SYNGAP1 Founder, CEO, & SYNGAP1 Dad to Tony shares a very personal family update.
Show Notes:
"When your kids are tiny, we've all said it ... 'Nobody can take care of this kid but us!' And we believed that ... until about a year ago."
Mike Graglia, Co-Founder and CEO of CURE SYNGAP1, and Dad to Syngapian Tony, joins Jo to talk about the latest chapter in raising Tony, diagnosed …
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