# Rett Syndrome
Top podcast episodes
Updated:
rett syndrome (RTT) is a genetic disorder that typically becomes apparent after 6–18 months of age and almost exclusively in girls. Symptoms include impairments in language and coordination, and repetitive movements. Those affected often have slower growth, difficulty walking, and a smaller head size.
How One Patient Organization Catalyzed Drug Development
Monica Coenraads, the mother of a daughter with Rett Syndrome, has played a critical role in catalyzing development of therapies to treat the rare, neurological disease. She co-founded and served as director of research for the Rett Syndrome Research Foundation. She later founded and today serves a…
All that matters is that they are ok
Heidi and Jenny hypothesize about gene therapy. Heidi has an addendum, hopefully its the right information. We should be celebrating the little steps forward in gene therapy for Rett Syndrome.
Listen for all your complex parenting laughs.
Episode 39 - "From Hollywood Lights to Guide Dog Insights: Melissa Rubin's Extraordinary Journey"
Title: "From Hollywood Lights to Guide Dog Insights: Melissa Rubin's Extraordinary Journey"
Description:
Join us for an inspiring and eye-opening episode of The Trevor Roberts Talkfest Podcast as Trevor sits down with Melissa Rubin, a woman whose life journey spans the glitz of Hollywood and the he…
Morning Bell 11 November
Wall St topped record territory on Friday with the S&P500 and Dow Jones ending the day at fresh record highs in the wake of Trump’s election victory and the Fed cutting interest rates by 25-basis points late last week. The S&P500 rose 0.38% to a fresh record 5,995.54 points, while the Dow Jones ros…
On the Couch with Jon Pilcher: What's Next for Neuren Pharma
Welcome to another episode of 'On the Couch'. This occasional podcast series of chats with brokers, CEOs, and fund managers aims to give you an insight into the investing world. In this episode, Henry Jennings welcomes back Jon Pilcher, CEO of Neuren Pharma (NEU). Jon is an old friend, having joine…
Gene therapy update from Neurogene!
OMG! Neurogene released an update on the gene therapy trials for Rett Syndrome and we are thrilled, excited and cautious. Exciting newsthat we can't fully be excited about but also can't stop ourselves from being excited, GAH!
Alex Conyngham Mountcharles
Alex Conyngham - the son of Sir Henry Mountcharles - explains why their winter show ‘Enchanted Kingdom’ at Slane Castle was inspired by his young daughter Laragh who has Rett Syndrome https://www.slanecastle.ie/enchanted-kingdom-at-slane-castle/ Rett Syndrome support: https://rettsyndrome.ie/See om…
Gary Fowler & Monica Coenraads: Accelerating Cures for Rett Syndrome
GSD Presents:
Accelerating Cures for Rett Syndrome with Monica Coenraads
Nov. 05, Tuesday
#GSDPresents #AcceleratingCures #RettSyndromeAwareness #MedicalInnovation #HealthcareAdvancement #MonicaCoenraads #November5Event #RettSyndromeResearch #HealthcareImpact #SupportRareDiseases
Ep 419: Tamara Tuckson of CEO and founder of Mission 2 Advocate discusses Rett Syndrome, her Daughters triumph over it, and more
Welcome back to The Trend with Justin A. Williams! In this episode, I sit down with Tamara Tuckson, a powerhouse of advocacy and resilience. Tamara is an Academy alumna, a first-place pitch winner, an Academy facilitator, and the CEO and founder of Mission 2 Advocate. But beyond the accolades, her …
EP008 Through the Eyes of Others: Communication and Perspective in a Silent World with Elaine Keuning
In this episode of 'Choice, Not Chance. Simplifying Success,' host Marie Chindamo discusses a thought-provoking topic on the importance of communication, especially for individuals with high cognitive function but no capacity for language. Guest Elaine Keuning, a speech and language pathologist, sh…
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