Amy Grover "Orange Nation" 3-20-24
Amy Grover, athletic trainer from Syracuse Orthopedic Specialists, joins Steve and Paulie to discuss the role of an athletic trainer and the theme for National Athletic Training Month.
Empowered by Experience: Rich Daly on Epilepsy and Leadership
Welcome to the inaugural episode of Catalyst Convos! Join hosts Amy Grover and Carrie Ostrea as they embark on an inspiring journey with Rich Daly, the Chief Executive Officer of Catalyst Pharmaceuticals. In this captivating discussion, Rich opens up about his personal battle with epilepsy and the …
Amy Grover "Orange Nation" 3-12-25
Amy Grover, Sports Medicine Coordinator for Syracuse Orthopedic Specialists, joins Steve Infanti and Paulie Scibilia to discuss the "Champions in Healthcare" theme, and give some insight into her role.
Overcoming Healthcare Hurdles: Inspiring Stories from Laura Romero and Desiree Taliancich
On this episode of Catalyst Convos, host Amy Grover is joined by Laura Romero, a university student living with epilepsy, and Desiree Taliancich, a nurse practitioner diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). Together, they dive deep into the unique healthcare challenges in the Hispa…
Bridging the Gap: Rural Healthcare Access in Rare Disease
In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea explore the often-overlooked barriers to care faced by rare disease patients in rural communities. Joining them are Darby Gavin from the National Organization for Rare Disorders (NORD) and Terri Klein, President and CEO of the M…
Fatherhood and Caring in Rare Disease Families
On this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea are joined by two rare disease caregivers, Mark and Bill, who open up about their journeys as fathers, husbands, and unwavering supporters of their families. Mark shares his experiences navigating life alongside his wife, who li…
Welcome to The LEMS Aware Podcast
The LEMS Aware Podcast is a new series created to celebrate and support people affected by LEMS, whether they’re patients, caregivers, or medical professionals. Hosted by Amy Grover, Executive Director of Patient Advocacy at Catalyst Pharmaceuticals, the podcast aims to shed light on the everyday r…
The Invisible Reality of LEMS
Living with LEMS isn’t always obvious to the outside world—but that doesn’t make it any less real. Invisible symptoms like muscle weakness, fatigue, or dizziness can quietly disrupt your workday, your weekend plans, or even your sense of identity.
In this episode of The LEMS Aware Podcast, host Amy…
Building a Future for Adults in the Duchenne Community
In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea sit down with Marissa Penrod, Founder and CEO of Team Joseph. Marissa shares how her son’s diagnosis with Duchenne muscular dystrophy changed the trajectory of her life and how that journey has evolved as more young people with …
A Biker's Unexpected Mission: Bringing Adventure to Rare Disease Kids
For children living with Duchenne muscular dystrophy, every adventure is an opportunity to create memories, build confidence, and experience life beyond their diagnosis.
In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea sit down with Jeff "Riot," Rare Disease Advocate, Communi…
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