# Ashley Haywood

Principais episódios de podcast
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Quarantine Real Talk

Quarantine Real Talk Episode Summary Today I decided to have candid conversations with several colleagues about their thoughts on the Coronavirus and Quarantine.  This comes in the fourth week of physical distancing.  I wanted to get a feel for how people were moving through their process, personal…

Sanfilippo Syndrome with Ashley Haywood ( Sadie’s Mom)

Today Im sitting down to chat with Ashley Haywood. Shes the mom of 6 year old Sadie Rae who is a viral sensation on tik tok and instagram @savingsadierae where she spreads advocacy and joy. Sadie Rae was diagnosed with Sanfilippo Syndrome which is  childhood dementia. I wanted to have mom come on a…

Talking with Embrew Tea Founder Ashley Haywood

This week we have a fascinating conversation with Ashley Haywood, the Founder of Embrew Tea, where we find out why you can re-steep their tea bags! Jeff talks with Ashley about her journey from a tea lover to a tea entrepreneur. She talks about the challenges she faced in starting her company and t…

Turning Pain into Purpose: Rare Mama, Ashley Haywood’s Advocacy for Sanfilippo Syndrome

Send us a text In this deeply personal episode of Confessions of a Rare Disease Mama, I sit down with Ashley Haywood, a devoted mother and passionate advocate for her 8-year-old daughter, Sadie, who is living with Sanfilippo syndrome. Often referred to as "childhood Alzheimer’s," Sanfilippo syndrom…

Sanfilippo Syndrome and Spreading Advocacy Worldwide

Welcome to episode 4 of Medical Mom Talk. This week I had the lovely privilege to speak with Ashley Haywood, a mother, an influencer, and an advocator. After her daughter, Sadie Rae, was born, she began her journey in advocating for answers. Her advocacy journey didn't stop there. Once Sadie was di…

Episode 23 A Mother’s Love: Ashley Haywood on Saving Sadie Ray and Living with Childhood Dementia

🌿 Top Takeaways: Grief and Joy Can Coexist: Ashley shares the emotional weight of watching Sadie lose skills — while fiercely choosing to create joyful memories that will last a lifetime.  The Power of Early Diagnosis & Advocacy: Ashley’s persistence in pushing for genetic testing at just three mon…

Episode 25: Advocating for Sanfilippo Children

Dr. Fontanetta speaks with sanfilippo parent and advocate, Ashley Haywood, to discuss the latest clinical trials, treatment, and political/financial barriers. Hosted by pediatric neuropsychologist, Rebecca A. Fontanetta, PsyD, ABPdN and produced by Rainbow Fish Lab. Website: theneuropsychlopedia.co…

Outlook: 50th Anniversary Special Edition – Coventry News, Archives & Local Sports

Celebrate a monumental milestone with this special 50th-anniversary episode of Outlook, the talking newspaper for Coventry! Recorded on September 16, 2026, host Ashley Haywood guides listeners through five decades of local audio heritage alongside current community news, local updates, and sports. …

Outlook: 50th Anniversary Special Edition – Coventry News, Archives & Local Sports

Celebrate a monumental milestone with this special 50th-anniversary episode of Outlook, the talking newspaper for Coventry! Recorded on September 16, 2026, host Ashley Haywood guides listeners through five decades of local audio heritage alongside current community news, local updates, and sports. …