Adult CHD Survivors with Neurological Problems
Send us a textDue to the complexity of the surgeries needed to help people with complex congenital heart defects, it is not uncommon for some survivors to suffer some neurological insults resulting in cognitive delays or even permanent neurological damage. How do parents of children with heart defe…
Encore Presentation of "Adult CHD Survivors on Pregnancy & Motherhood"
Send us a textHow do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?
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Treating Heart Failure in Adults with Congenital Heart Disease: Mental Health Concerns and Treatment
Treating Heart Failure in Adults with Congenital Heart Disease: Mental Health Concerns and Treatment
Guest: Laura Suarez Pardo, M.D.
Host: Luke J. Burchill, M.B.B.S., Ph.D.
Tune in to the discussion of mental health concerns and treatment for patients with congenital heart disease (CHD) and hear…
Growth and Resilience Through the Journey: Laura Achilles' Adult CHD Story
In this episode of From the Heart, Rachael sits down with Laura Achilles, a heart adult living with congenital heart disease (CHD). Laura, an actor in her 30s, shares her journey of growing up with CHD, moving from the UK to Australia, and navigating a new healthcare system on her own. She opens up…
Voices of Strength: Tyler Šajdák's HLHS Journey and Advocacy in the CHD Community
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Tyler Šajdák wasn't supposed to grow up. Born with hypoplastic left heart syndrome in 1993, he was part of a generation receiving experimental surgeries with uncertain outcomes. Today, at 31, he works as an academic advisor, pursues a master's degree, and serves as a powerful advocat…
A Parent’s Guide To CHD, Neurodevelopment, And Resilience
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What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families t…
41. Adult CHD and a Life Without Limits: Fontan, Yoga, and Two Years in Spain
Courtney Merhab was born with a hypoplastic left ventricle, transposition of the great arteries, and double outlet right ventricle. Today, she lives with Fontan circulation and a pacemaker. She is also a certified yoga teacher who spent two years living in Spain.
Her life is built around caring for…
Episode 399 - Roslyn Rivera, RN, BSN
Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children's Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. She holds the role…
Rethinking Transition Care for CHD Survivors
Send us a textWhen teens become young adults, so many changes occur. For teens with congenital heart defects (CHDs), the changes that occur are often magnified. With the changes that happen in the body as children become adults, there are other changes that happen, too. Oftentimes, CHD Survivors ha…
How is CHD Managed over a Lifetime?
Over 1 million children and 1.5 million adults are living with CHD in the US. In this episode, join me and I discuss annual cardiology appointments, cardiac imaging, blood work, and medications prescribed to keep individuals with CHD as healthy as possible. If you are an adult living with CHD who n…
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